News - Part 5

Role of Inflammation in Epilepsy and Treatment With IVIg

Melanie Siv, Doctor of Pharmacy Candidate, Wingate University School of Pharmacy 5/17/2010 Intractable Childhood Epilepsy Alliance Drug Information Rotation Harriet Davies, PharmD Rotation Advisor Abstract The aim of this article is to review evidence discovered regarding the link between epilepsy and inflammation including the use of IVIg for treatment in epilepsy. Trauma and infection in […]

American Epilepsy Annual Meeting 2010

The American Epilepsy Society’s Annual Meeting is the premiere meeting for epilepsy and other seizure disorders. The Annual Meeting is an international forum for the exchange of current findings in epilepsy research. Information is communicated and disseminated through symposia, lectures, scientific exhibitions, poster and platform presentations. The Annual Meeting attracts attendees from all over the world and […]

The Sodium Channel and Morbidities Associated with Dravet Syndrome

The Sodium Channel and Morbidities Associated with Dravet Syndrome (SMEI) A focus of the works of Dr. Louis Cooper, Chair of Pharmacology, University of Washington School of Medicine Written by : Harriet Davies, PharmD Dr. Cooper is interested in electrical signaling in the brain and peripheral nervous system, its regulation in normal physiology, and its […]

Drug Selection with the Ketogenic Diet

Guidelines for Drug Selection in Patients on the Ketogenic Diet The following data has been compiled as guidance to be used when prescribing for children who are on the ketogenic diet.  Whilst best efforts have been made to ensure accuracy and completeness of the list, USERS MUST ENSURE THEY CHECK DETAILS WITH MANUFACTURERS, PHARMACISTS OR […]

Dravet Syndrome Research Opportunity

This is an opportunity to help with Dravet Syndrome research.  It is an optional survey.  This is generated by an organization independent from ICE Epilepsy Alliance. If you are interested please click on the link below to fill out the online survey.  Completion takes about three to five minutes.  Please complete as soon as possible but by […]

Educational Placement Template Letter

This template letter may be useful in obtaining the educational placement or services you need for your child. Child Neurologist Address October 1, 2007 Preschool Coordinator Public School System Dear Ms. XXXXXX I am a pediatric epileptologist and care for __________.  I am writing to you concerning  _________  preschool placement within the ____________ County public […]

My Child Has Epilepsy – What Next?

Find a child neurologist. (See Resources) It will be helpful if you can record your child’s seizure activity with a video recorder to show the child neurologist.  It is often hard to describe seizure types, an epileptologist can most accurately determine what type of seizure your child is having is through a video EEG in an epilepsy […]

Pharmacology for Epilepsy Patients

General Principles of Pharmacology for Epilepsy Patients and Their Caregivers Summary I recently attended a workshop for parents of children with epilepsy designed to gather opinions about the launch of an educational website. During the workshop, the following question was raised to this small group, “What information do you need from health-care providers to better […]

Sudden Unexpected Death in Epilepsy

(Sudden Unexplained Death in Epilepsy) What is sudden unexpected death in epilepsy (SUDEP)? The definition of SUDEP is “sudden, unexpected, witnessed or unwitnessed, non-traumatic and non-drowning death in epilepsy, with or without evidence for a seizure and excluding documented status epilepticus, in which postmortem examination does not show toxicological or anatomical cause for death.”  The […]